The Ephemeral Curse of Lyme Disease

Coming to Terms With Reality

Many of us are naive enough to believe that an infection is something which yields an illness of a specific duration. Colds and flus pass through our lives with a fairly specific duration. We understand there are things which are chronic but generally we expect them to come to an end. Such was the case when I receive a visit from Lyme Disease and the spirochetes which cause it.

An Erratic Course of Diverse Symptoms

Diverse symptoms confused the picture. I thought I was getting old. Well, I was but that was not the primary issue. Finally my wife told me I had most of the symptoms suffered by her friends who had Lyme Disease. The blood test I took was negative. Later I learned the blood test is completely unreliable but practitioners were too often relying on it anyway. I never had the bullseye rash and evidently most people don’t. We were told we got it from ticks and now they have decided mosquitos also convey it. Finally I tried a course of antibiotics anyway and suddenly was getting my life back. It was clear I had Lyme Disease and got better. My course was a year without major symptoms and then a year of barely perceptible steady decline.

What I didn’t expect was that I would then suffer a seemingly free year and then a decline again. That pattern repeated again and my denial was finally broken when the fourth episode made it clear to me that I had a chronic disease.

Unfortunate Revelations

I was very disappointed. Over ten years I learned that not only did we have an unreliable blood test but that there was no vaccine for humans. There was a vaccine for dogs but pharmaceutical companies didn’t think it was profitable enough for humans. And while the epidemic infection raged on there was denial in the medical profession.

Endless List off Symptoms

No, there are not consistent symptoms. The spirochetes can attack anywhere in the body with unpredictable durations. My toes curled up and the damage was serious enough to require multiple surgeries. And now that I’m having it fought with a wide range of medications I suffer changing symptoms each day. Yes, there is fatigue, sudden joint swelling, aches and pains, brain fog and on and on. And I’ve learned that the little beasts can adapt so they are resistant to the most commonly used antibiotics. In one course the antibiotic suddenly stopped working. These creatures can put up a shell which protects them. But there is a way to pierce the shell if the physician is knowledgeable about it.

Go online and Google Lyme Disease. It is an eye opening experience.

An Uncertain Future

Quite frankly i feel had and can’t project my outcome. But this should not have happened and the epidemic should have  been contained early on. It is clearly time to improve our health care system and deal with a pharmaceutical industry which needs firm regulation. People are being victimized by out of control costs and poor attention to realistic needs.

It Feels Like An Infestation (Which It Is)

What is distinct about this disease process is that I can feel the reaction and resistance of the spirochetes. It feels like they are fighting back but with a variable arsenal of resistance. We tend to see an invading organism as being somewhat passive and that it can be overwhelmed. But in this instance they are not passive and have a variety of tactics. It is almost like there is an intelligence with an arsenal. And we, as humans, are far behind them. It is like living in a science fiction story.

Recommendations

My recommendations include not assuming the blood test is reliable, if you don’t see the bullseye rash don’t assume you haven’t been infected. Understand that medication may suddenly stop working. Know that symptoms may change very slowly and a return of Lyme may take months before you understand it is back. Understand that there are no typical symptoms and any sudden changes may reflect the disease. Above all, don’t be passive. If you have any hints of infection, study it on line and be vigilant. It is not immediately lethal but can cloak your life in fatigue and serious ongoing consequences. May the force of resistance be with you. And let’s hope our understanding and response improves.

What to do? Seek treatment at once. Study the latest information on line. Be vigilant. Stay with treatment beyond the basic period. Response is still developing so stay on it and continue to seek information.

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